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Appeal to help 9-year-old boy who is suffering from rare disease

Appeal to help 9-year-old boy who is suffering from rare disease

Hyderabad: A 9-year-old boy, Ayaan is suffering from a rare disease, ‘Complement Hyperactivation, Angiopathic thrombosis, and Protein-losing Enteropathy’, also known as CHAPLE Syndrome.

Cost of treatment

The cost of the treatment for one month is Rs. 20 lakh.

Luckily, a Turkish hospital offered to provide free treatment to the kid.

However, the parents have to bear other expenses including traveling and lodging costs.

  • CHAPLE Syndrome
  • CHAPLE Syndrome
  • CHAPLE Syndrome
  • CHAPLE Syndrome
  • CHAPLE Syndrome

It may be mentioned that the duration of treatment in Turkey is around 6 months.

Apart from it, the kid has to undergo treatment in Rainbow hospital, Hyderabad after returning from Turkey.

Current treatment

As it is an extremely life-threatening disease where protein levels go down and the body is vulnerable to multiple infections, the hospital is giving 3-4 Albumin protein injections per month.

The cost of the treatment per visit is around 15-16 thousand.

Father of the kid

The father of the kid, Tajuddin who works as a postman has been arranging funds for the treatment for the past eight years. However, now, affording treatment has become beyond his capacities.

Philanthropists are requested to help Tajuddin by making donations.

Account details are as follows:

SBI Bellampalli Branch
Account number: 20420707794
IFSC Code: SBINOO15911
Name: MD. Tajuddin

Google Pay or phone pay: 9849338033


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